Happy October Members!
Before we get started, let’s rejoice with celebrations and victories! One recent post by Gail Reynolds Frank was filled with funny stories of life transformation as her daughter moved through OIT treatment. Here are a few favorite quotes:
“I don’t even know where they went to eat! Who cares? Sarah was annoyed she had to wear a dress…”
(Of OIT) “…we LIVE like it’s a cure.”
“The Epi-pen becomes your Epi-friend and you know if, for some strange reason a reaction occurs it simply stops a reaction immediately and you text your doctor. Epi becomes the spare tire in your car, the fire extinguisher in the kitchen, the band aid in your purse. With it you are invincible and unafraid. Life is incredible when food is just food!”
“…a teen headed out for a night with friends can be focused on complaining that she has to wear a dress.”
CONGRATULATIONS to Sarah and all of you who are
CHANGING YOUR FOOD ALLERGY STORIES!
Recently, we removed members from various facebook support groups for mentioning doctors not on our List. Though we have explained our reasoning ad nauseum, I will be more blunt in hopes everyone finally understands. Caps are utilized for emphasis– and maybe a little screaming.
“Her doctor isn’t on our List. So what if s/he “trained” with one of our doctors? Our doctors tell me who to add if that’s the case. Just buying the protocol for $X does not make you qualified to be on our List. And this is exactly why I do not rush to add them. If they’ve had a few patients, they’ve worked through these issues, either by going through me to connect them with an experienced doctor, or reaching out to them on their own. [The doctor is having trouble… BECA– USE THEY WERE NOT TRAINED THOROUGHLY. ] … [And, as an after-thought, they have a few conversations with our doctors about what to do for their patient] …that does not mean they [were actually TRAINED] or [automatically] get on our List or mentioned on our pages. If their doctor isn’t on our List (yet or ever) no. They cannot utilize our attention or time…We don’t need to know any of this———— go to Dr. X, who IS on our List and you wouldn’t be in this place. Don’t bring us your unsupported [hardships].”
7. We do not want your “publicity” if it means compromising our values and twisting the reputations of our physicians– we are not putting them in the line of fire or debate. OIT is not a “get rich” trick. And we don’t have to “compete” with typical professional allergy organizations because we specialize in something they do not have–Private Practice OIT Allergists.
Those organizations have been paid boatloads of money from allergists and doctors, nurses, administrators, in various fields of medicine, to provide current news and education. They have failed. How do I know? My family is out enjoying their day and I am here working on OIT– appreciatively. I still might not get that doctor on our List, but he is demonstrating Grace and Understanding, which reinforces and strengthens our determination to make sure people know who they are and what they offer. We have technical and structural things to work out. If we had a fraction of revenue that the professional organizations have, he and perhaps 60 others would be on our List by now. Eventually, there will be hundreds, and thousands, across the planet. We can fall apart in complicated times, or we can be grateful and keep doing our best by any means necessary– even taking breaks.
“I’m at the pool watching my children. Why aren’t you calling my doctor.”Yeah, … that only gets you deleted and blocked. Here’s how your conversation with the doctor office goes, “Hi there. I’m at the pool watching my children so I might have to hang up but I’ll call you back when I can. I’m calling about your OIT program. A friend of mine said you were going to start offering OIT in the fall …….”Then YOU can provide US with your helpful information– all while you tan.
“Dr. Well-Respected is offering OIT at our local hospital. I thought you would want him/her on your List and to tell everyone because some people aren’t independently wealthy and cannot travel. We are not rich so we’re going to him/her regardless.”
If you find a local allergist who is interested or offering OIT, please let them know about us and we will help if we can. You are 100% allowed to pick up the phone and make your own calls!!!
There is no need to ever wait for me to call on your behalf. I love you for having such faith and trust in me, but if I made this happen for my son, and acquired immeasurable help from other parents to procure help for thousands of others, you can do this too! You can contribute time, knowledge, or money to speed things along and expand our OIT world.